#12: "Elena Dementieva"
I am, depending on the individual and how they know me, either a reticent and seemingly sorrowful twat or someone inordinately optimistic, bordering on infuriatingly imbecilic. To some I’m even enigmatic. That sounds quite nice, possibly a bit like a suave secret agent, until you realise enigmatic could equally describes most anonymous tramps. But I do tend to exclude details that are pertinent and defining to most people, but to me misleading shortcuts amounting to tedious approximations of character. I feel I boycott many aspects of life by tending to innately repudiate most adult traits, by not being such things as supercilious, obdurate, arrogant, platitudinous, constrained, apathetic or gauntly vapid. Not meaning to sound entirely disheartened by humanity. Maybe the two qualities that do bother most are certainty and general mean spiritedness.
Often profundity finds itself accompanying morbidity, but in my case it’s more of a disproportionate triptych dominated by joyousness. My point is, in my experience, that perfect joy is born out of the exorcism of morbidity through the embracing of profundity.
Death being the tyrant of all that is profound, through the years I’ve had various perspectives on the subject. I tend to think your relationship with death reflects that of your relationship with life - to be simultaneously fathomed or disregarded. On occasion I envisage distinctive ways to die. There are numerous varieties concerning heroism, martyrdom, slap-stick etcetera, but they are mostly regarding style. I always thought a sudden death, a brain haemorrhage or dying in ones sleep, allows death to loiter unpropitiously and abstain as an experience. Oh, then there are all those, you know, really ill ones....a bit too miserable and bothersome.....Something like Alzheimer’s is perfect. I always thought it made life handily palindromic. You’re weaned off life like you were weaned into it. Old age is roughly palindromic physically in terms of bodily vulnerability. Also our sight and hearing becoming restricted, mirroring the unrefined hearing and 12-inch short sightedness of a newborn. In addition, dementia largely means your comprehension of death being roughly inversely proportional to your demise. I just think I could handle that.
Endorsing my conclusion recently, the programme “My Life on a Post-it Note”. Originally aired quite a while ago and repeated a few weeks back. It documents occasions in the life of 65 year-old, Christine Lyall-Grant, a former copy editor at Cambridge university press and now full time Alzheimer suffer/enthusiast. The programme, though notable for the eloquence with which she explains her experiences, stands out mostly because Alzheimer’s can be quite funny. I did like this woman very much. By the time the cameras were able to record her life she had already regressed into a stroppy teenager. Especially funny is the frustration on her daughter’s face whenever she tries to provoke important conversation. On the journey to a vital hospital visit her daughter, with subdued desperation, asked her what things she had thought of to discuss with the doctor, with which she replied after lots of blank glaring: “….Talk about what?”,
“..........What you want to say to them at the hospital...”
“............Do you know what I want to say to them?”
“..No..”
“No, no do I.”
This woman had been and mostly still is very intelligent and articulate. Practising for her test at the hospital, to recite the most number of words beginning with P, she only manages to retain her superior vocabulary up to a point, “Plumage. Prolepsis. Population. Plebiscite. Prudence. Postillion…………………..Pork”. Why ‘pork’ is such a hilarious word to me I have yet to discover.
The chaos in her house is quite exciting, or how she chooses to describe her domestic skills, to her daughters embarrassment, “I was a terrible slut and I really would like to go on being”. At one point two CPNs (Community Practice Nurse) hold a kind of emergency meeting on the subject of her untidiness and after lots of deliberation decide different ways to counter it. The next day when one returns, the look on her face is priceless when see says,
“I don’t know how much you remember of the conversation we had last week.......
none really.
............right OK”
Personally I liked the requirement of having a big notice board up containing the names of her three ex-husbands. In her many diaries, one reminder I quite liked was, “SUPPOSED BRAIN DONATATION”, to remind her to call a friend with whom she had to double check if she had agreed to donate her brain or just imagined doing so.
If one Alzheimer’s suffer is humorous a bus load is engrossingly comedic:
“Have you had that CPN who comes round as says, erm, “I think it would be a good idea to label draws and cupboards?”.”
“........I think so yes, it vaguely sounds familiar”
“............The thing is remembering that I’ve got a drawer, that I’ve got a cupboard, do you know what I mean?”
“YES, you go and open something and you discover things that you….”
“YES, ISN’T IT EXCITING THOUGH. I love that bit!”
Exploring the pros and cons of being put in a home and lasting until she was 90, because she was sure “they’d put something in the soup”, she argues another solution:
“I just want to go in the sea....go swimming and swim until I can’t swim any longer. Then just sink. Nobody will let me go because they think I’ll drown myself. They think, you know, eugh, can’t risk it. Which I suppose is very nice in one way, bloody annoying in another.”
Oddly her daughter prefers not to talk about it too much:
“I want to drown though darling, in the sea! I’d love it!
“You have to get to the seaside first.”
“I know, bloody....what did I tell you. Nobody’s going to take me…”
“..we all know what you’re going to do”
“...Oh fuck it....Look at it, we’ve all got to die sometime. Which way would you rather go, I’d rather go in the ocean that’s all..... I like swimming....I’m a good swimmer....THAT‘S THE WORST OF IT....I need to pick a really, you know, billowy day when the surging waves simply knock me out!…I’d love it, oh you know that I would..”
As the disease progressed she became happier with her simplified world, especially when she did manage to go swimming in Southwold. Of course by that time she’d forgot she wanted to drown. But I too feel that death and demising should retain as much joy as is possible. That is my conclusion, but before her conclusion, as we’re speaking of joy….
Quote from a Random Sky Digital Channel OF THE DAY-
“I have never ever ever had a better bite of steak than that”
Morally Questionable Comment OF THE DAY -
“She dies” (midway through a programme featuring an old woman who was burgled)
“Does she??” (bystander remark)
“I dunno really.....”
(my reaction when the presenter reveals she died soon after) “YES!!”
“I really feel that voluntary euthanasia is the best way forward for someone like me, when I get really decrepit, because I want to be able to choose my own going, my own exit.
The problem I have now, which I’ve now realised, is when do I do it. Every time I think, “oh well, just put an end to it”, I desperately want to see tomorrow.”


